Name: EDS
Age: 30
Sex: F
Occupation: Teacher
Infected: 8/2004
Type: HSV2
OB's per year: around 4-5
Symptoms: localized pain in the genitals, open
sores, PHN type nerve pain (after sores heal) down my legs and into my
toes
Triggers: Stress, other illnesses,
menstruation
Method of control: 400mg of Acyclovir 2x a day
My story: I was always that girl who
insisted on using protection- it was almost a joke with my friends about
how I would kick a guy out if he gave me a hard time about not using
a condom. I had met and was dating a guy. We attended a wedding together
where we had too much to drink and had unprotected sex after the wedding.
Afterwards I was very nervous and upset about it, but my friend calmed me
down and assured me that mistakes happen and I just wouldn't do it again.
Two days later I was very irritated in the genital area. But I
was so nervous about not having used a condom I thought I was overreacting.
The next day I had a cluster of open sores. I knew immediately what it was and
was frantic. I called and luckily was able to get an immediate appointment
with a doctor in my primary doctor's office. She looked and said it looked
like it could be herpes but she thought it was more likely an allergy because
it was missing some of the traits herpes primary obs usually have (all traits
which I have never heard of anywhere else). She did a culture and sent me on
my way.
A few days later I went back because I had a new sore and was
headed out of town and was worried about having flu symptoms while I was away.
She assured me that the flu symptoms would have come FIRST but told me that
the lab's initial look at the DNA structure of my culture looked like it was
probably herpes, so she gave me a prescription for acyclovir.
I had 2 more doctors appointments over the month. I cried
through all four appointments.
Meanwhile, the guy I had been dating had fallen off the face of
the earth. I hadn't told him anything that had been going on because I wanted
to wait until I knew for sure what it was, and because initially I didn't
think I had gotten it from him because I didn't realize you could develop
symptoms so quickly after contact.
After a month of trying to track him down we exchanged emails
where he told me he had stopped calling me because he felt like we weren't
looking for the same things in a relationship. I told him that was an immature
way to deal with it, but regardless there was something we needed to discuss.
He asked me if I was pregnant and I told him no, but that we really needed to
talk. He told me he'd call me that weekend.
He didn't call and wouldn't answer his phone when I called him.
I left the news on his voice mail, and told him that with the timing it seemed
very likely I had gotten it from him. That he may have it and not even know
and that he should call his doctor. I never heard from him again.
HHP has been really helpful in helping me accept this. I have
come to see it is really an inconvenience. Don't get me wrong- it's one I wish
I didn't have!!!! But it could be worse...
Medical experience: I was diagnosed with HSV2
by culture with my primary. I saw 3 doctors in the first month. I cried
through all my doctors' appointments and all of my doctors were very
sympathetic, but told me it wasn't a big deal and that so many people had it.
My gyn was the best. She was most informed and most helpful. She was the first
to talk about suppressive meds, and after six months when I went back in tears
because I had had six OBs in six months and had problems every month during my
period, she told me that happens to many women (I was the third that week who
had come to her with that complaint) and immediately put me on suppressives.
I've never had any problem getting meds and she's always available if I have
problems or questions.
The only thing is I wish I had known to ask for a blood test
during my primary. While ultimately it probably doesn't matter, I would have
liked to know if this was a virus that had been sitting around in my nerve
bundle waiting to make an appearance or if I had really just gotten it from
the wedding guy.
Telling: I told 3 friends right away and
they have been an irreplaceable support to me. None of my family know. I have
only had "the talk" once with someone I'd been friends with for
2 years but had progressed to a romantic relationship. The guy bailed- he
recently contacted me after 5 months of no contact, but I didn't return his
call. I've started posting in my online personals ads (non H sites) that
I have HSV and have received many positive responses, both from H+ and H-
people. I have met guys through that method and dated them without any H
problems.