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muffinadmin
Guest
May-15-05, 08:50 AM (CDST)
 
"starting a Herpes HELP support group"
 
   If you're interested in starting a Herpes HELP support group, take a look at the second part of this thread to get an idea of what's involved...

http://www.racoon.com/dcforum/DCForumID8/948.html


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  Subject     Author     Message Date     ID  
  starting a Herpes HELP support group...some progress! sparky Jun-14-05 1
     Kudos to your effort ~ Yoshi2me Jun-14-05 2
     Lots of details... Rajahadmin Jun-15-05 3
         RE: Lots of details... sparky Jun-15-05 4
             RE: Lots of details... muffin Jun-15-05 5
             We've got two lines for our company... Rajahadmin Jun-15-05 6
                 RE: We've got two lines for our company... muffinadmin Sep-03-05 7
             RE: Lots of details... littlegirllost Sep-04-05 8
                 RE: Lots of details... sparky Oct-01-05 9
                     persistence pays.. Rajahadmin Oct-01-05 10
                     RE: Lots of details... muffinadmin Oct-02-05 11
                         it's official! sparky Oct-11-05 12
                             WOW, you're legal !!! Rajahadmin Oct-11-05 13

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sparky
Member since Apr-7-05
641 posts
Jun-14-05, 09:57 PM (CDST)
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1. "starting a Herpes HELP support group...some progress!"
In response to message #0
 
It's been a few months since muffin posted this about my efforts to start up a herpes support group in my area, so I figured I'd add an update for those who've been sitting on the edge of their seats!

Am still in the process of setting up a HELP group, a herpes support group affiliated w/ASHA (American Social Health Association). ASHA has a few requirements, but nothing too hard. I must admit, the hardest part in the beginning was making cold calls to strangers, giving them my name and number, and talking about herpes!

The most time-consuming part for me so far is finding a medical advisor, as each group much have an MD, NP, RN, or some kind of medical professional willing to work with the group. I've been in contact with the local county health department and there's a NP at their STD clinic who's interested. They've invited me to their next staff meeting to see if we can drum up some more support. Also, good news today: I got a call from the person who directs clinical operations for PP in my region and she might have someone interested in helping as well.

The other details are fairly minor: deciding how to handle phone service (if it will be donated by a sponsoring organization or if I'll get another line or cell phone); mail (home address or p.o.?); and finding a suitable place for a regular monthly meeting (still haven't settled on one yet).

ASHA has a helpful kit that spells out all the steps required for affiliation, if you are interested.

I'm hoping to have it up and running by Labor Day...hope that's not too optimistic on my part!


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Yoshi2me
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4176 posts
Jun-14-05, 11:49 PM (CDST)
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2. "Kudos to your effort ~"
In response to message #1
 
If you need some extra help via e-mail you know where to reach me.

Angela

Herpes Help
Herpes Blog
Herpes Resource
STD Message Board


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Rajahadmin
Charter Member
9292 posts
Jun-15-05, 11:38 AM (CDST)
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3. "Lots of details..."
In response to message #1
 
I'd definitely recommend a PO box for snail-mail.. It's not a good idea to be giving out your home address. Regarding phone service, you might consider Vonage through your broadband Internet connection. It costs $24.95 a month for unlimited service or $14.95 for 500 minutes a month, including long distance. It's very flexible as you can actually have voice mail e-mailed to you or get it online. Call forwarding and so forth is easily set up by logging into your online account page. Let me know if you'd like more info or some help with that.

"Do the Right Thing. It will gratify some people and astound the rest." - Mark Twain


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sparky
Member since Apr-7-05
641 posts
Jun-15-05, 01:25 PM (CDST)
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4. "RE: Lots of details..."
In response to message #3
 
Rajah,

Have you had any problems with Vonage service? I was looking into their 14.95 plan recently because I think it might be the best fit and you cannot beat the price!

s


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muffinadmin
Guest
Jun-15-05, 01:30 PM (CDST)
 
5. "RE: Lots of details..."
In response to message #4
 
   sparky, thanks for sharing your progress!


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Rajahadmin
Charter Member
9292 posts
Jun-15-05, 05:34 PM (CDST)
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6. "We've got two lines for our company..."
In response to message #4
 
One is in Minnesota and another is here in Illinois with a Minnesota number. Work fine. Another Engineer I work with has had it almost since they became available. I think he has a Vermont number since his folks live there. We had one of our friends in NY who had some problems, but it was mostly regarding transferring her old numbers away from the regular phone company to Vonage..

Let me know if you need any help.

"Do the Right Thing. It will gratify some people and astound the rest." - Mark Twain


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muffinadmin
Member since Sep-10-04
1203 posts
Sep-03-05, 08:28 AM (CDST)
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7. "RE: We've got two lines for our company..."
In response to message #6
 
Anyone interested in starting a support group may want to take a look at this piece put together by the International Herpes Alliance. It's basically a mini How-to manual.

Here's the link:
http://www.herpesalliance.org/support_start_intro.htm

muffin

"Everybody hurts sometimes.
So hold on...hold on...hold on...hold on.
Everybody hurts. You're not alone." ~ REM


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littlegirllost
Member since Sep-4-05
8 posts
Sep-04-05, 10:14 PM (CDST)
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8. "RE: Lots of details..."
In response to message #4
 
   not to butt in too late, but my parents have vonage and they absolutely love it...they haven't had any problems with it.


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sparky
Member since Apr-7-05
641 posts
Oct-01-05, 11:36 AM (CDST)
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9. "RE: Lots of details..."
In response to message #8
 
wow...we started this post in may and here it is october and i've just sent in all the materials to ASHA for approval! never thought it would take that long.

getting a medical advisor proved to be trickier than i thought, but nothing that a little persistance couldn't overcome.

hopefully it will be approved soon and i can post about a new HELP group soon!

s


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Rajahadmin
Charter Member
9292 posts
Oct-01-05, 11:51 PM (CDST)
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10. "persistence pays.."
In response to message #9
 
Good for you, Sparky!!


"Do the Right Thing. It will gratify some people and astound the rest." - Mark Twain


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muffinadmin
Member since Sep-10-04
1203 posts
Oct-02-05, 07:16 AM (CDST)
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11. "RE: Lots of details..."
In response to message #9
 
Wow! Sparky, it's really happening - you're making your idea a reality. I'm so excited for you! Congratulations!

muffin

"Everybody hurts sometimes.
So hold on...hold on...hold on...hold on.
Everybody hurts. You're not alone." ~ REM


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sparky
Member since Apr-7-05
641 posts
Oct-11-05, 02:07 PM (CDST)
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12. "it's official!"
In response to message #11
 
here's a little happy ending to this thread:

just got an email from ASHA saying that CNYHELP is "an officially affiliated group of ASHA's Herpes Resource Center"!

spraks


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Rajahadmin
Charter Member
9292 posts
Oct-11-05, 03:58 PM (CDST)
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13. "WOW, you're legal !!!"
In response to message #12
 
Good for you, girl! I'm impressed.

"Do the Right Thing. It will gratify some people and astound the rest." - Mark Twain


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